Wednesday, August 19, 2020

COVID-19: The Story of the Train and Moral Imagination

 

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COVID-19: The Story of the Impossible Train

This is an exercise in moral imagining — a body of work developed by a growing network of storytellers, facilitators and narrative medicine practitioners to exercise #moralimaginations.

Phoebe Tickell
Apr 12 · 3 min read

Friday, August 14, 2020

The Meaning of Illness: Why Metaphors Matter

 A person’s sense of reality consists of two parts.

·      There is his “model” of reality, which contrasts and connects the objects that exist in his world, and

·      There is his conviction that these perceptions are true and extrinsic to himself. Before a model of reality can provide a sense of reality, a person must confirm it through experience: Models of reality are simultaneously “models of” and “models for”. 


A sense of reality means, then, imposing order through practical activity, “praxis.” This is any activity which seeks to go beyond the existing situation in order to change it. In praxis, a person uses his model of reality to think about his situation and his wants in order to formulate a subjective plan. He tests the plan against the objectively existing situation in which he finds himself, and with whose objects (animate and inanimate, human and nonhuman) he must work in order to satisfy his wants

 

The relation of wants, praxis, and the consequence of praxis must not be misunderstood: the desire to satisfy wants is the motive for praxis, but praxis fulfills its ontological role whether or not the wants are actually satisfied.



 

It should become clear that the notion of “work” which is central to understanding the meaning of medical beliefs and behavior is, if understood from an ontological point of view, a way of describing praxis. There are several reasons why sickness episodes are ontologically important settings.

 

(1) Episodes of serious sickness rarely lack compelling motives (wants) for action, for forcing people into praxis and for mobilizing audiences: On the one hand there is the medical motive of seeking a remission of symptoms, on the other hand there is the social motive of seeking exculpation for deviant behavior.

(2) Sickness episodes are recurrent events and they affect all members of society.’ This is

ontologically important, because no person ever learns or confirms his sense of reality in a

once-and-for-all event. It must be continually recommunicated to this person and

reconfirmed by him throughout his life (cf. Durkheim 1915:387).

(3) Sickness episodes are able to communicate complex models in a readily recognizable way. Etiologies cast a broad net, implicating objects, qualities, and events in every aspect of life; they sort out these diverse kinds of facts, combine them into relationships that cannot be articulated in everyday contexts, and by juxtaposing (“polarizing”) them with organic processes make

them cognitively impressive.

(4) Finally, sickness episodes (particularly serious-acute ones) are dramaturgical in form. While praxis takes place in many different settings, action that communicates and confirms abstract sociological and cosmological ideas tends to take place (in traditional and tribal societies, at least) in dramaturgical settings. Because these ideas are communicated mainly through expressive symbols, it is also true that these symbols are used most often in such settings. As a dramaturgical event, sickness is episodic in time and focused in space; it is clearly set off from everyday life; there is a sense of audience, for participants are carefully distinguished from outsiders; participants are fit into a small number of highly stereotyped roles that are played according to a more or less fixed program (i.e., with the knowledge and acceptance of a single set of rules) on a field dense with expressive symbols; there is the expectation that events will proceed toward a climax; the episode is marked by a mood infused by extra-ordinary emotions rising out of man’s profoundest fears; and it is sustained by a clearly articulated dialectic of persons and forces that lends a coherence to the world of events and experiences that is lacking or obscure in humdrum situations.

 

The sickness episode in the West is an extreme type, but by no means an unrelated one, among the sickness episodes played by the world’s peoples. That is to say, while the sick person in the West cannot serve as a model for understanding how sickness is played in other societies, it would be wrong to assume that the technological gulf which separates Western medicine from traditional medicine makes it impossible to compare episodes in these different kinds of societies.

(1) Social institutions in the West have tended to develop into progressively secular forms, and systematic analytic thinking has come to dominate in most aspects of social life over thinking couched inexpressive symbols.

(2) Technological developments in Western medicine have also had important consequences. The great advances in preventive medicine in the West and the appearance of “wonder drugs” have displaced serious-acute ailments from the position of cultural and epidemiological dominance that they previously held, and have left their place to serious-chronic ailments of less dramaturgical potential.

(3) The power to articulate models of reality and to confirm them has passed out of the sick person’s hands and into those of the professional healer.

 

As Eliot Freidson has observed, the Western medical model is built on a concept of sickness that reflects the healer’s point of view. It describes sickness according to a narrow biophysical determinism that reduces the sick person’s performance to mechanically determined behavior, and makes him more an object than an active participant capable of initiating action and influencing the choice of alternatives during the episode. The active and powerful healer and his passive and object-like client are symbolized in what seems to be a unique combination of ways. The physician demands nakedness, recumbency, unresisting access to body regions that are called “privates” in everyday life, and forbearance of the pain and discomfort which he causes-an assortment of forms that, in the West, is mainly limited to sickness episodes, the rearing of pre-adolescent children, the treatment of “unliberated” women during coitus, and the management of the populations of “total institutions.” The symbolization of sickness in the

West also means alienating the sick person’s volition from the operations of his own body.

The physician probes beneath the body’s surface (and the limits of the known self), into

regions whose secrets and betrayals only he can bring to the surface, and it is his choice

whether this knowledge will be shared with or hidden from his client. Even the sick person’s

consciousness is made superfluous to the episode by the healer’s diagnostic machines (such

as x-rays), by his ability to deal mainly with disembodied parts of his client (such as blood

and urine), and by his readiness to interpose professional deaf-mutes (technicians and nurses)

between the client and himself. Finally, the healer’s regime is absolute, since he leaves his

client (at least middle- and upper-class ones) no place to run. Healer and client share a

system of medical beliefs which both believe is universally relevant and excludes any

alternative explanations of sickness, and both recognize that only the healer fully

understands this system.

 

In both Western and other societies it seems that “in the face of actual or threatened

disaster, to do something is psychologically satisfying and a way of relieving anxiety;

anything is better than just remaining passive and waiting for it to happen” (Beattie

1964).

 

Medical beliefs and practices can never explain away sickness or death. Why, then, when they fail to produce a cure, can it be said that they make suffering sufferable?--while serious sickness is an event that challenges meaning in this world, medical beliefs and practices organize the event into an episode that gives it form and meaning.

 

What does separate them are the different kinds of ontological orders which they affirm. While one works a man-centered cosmos in the grip of anthropomorphized forces, the other moves toward a conception of man autonomous in an indifferent universe.

So What's So Cultural About Disease?

 Reading: Please Read This Short Article HERE

"We have to design a health delivery system by actually talking to people and asking, 'What would make this service better for you?' As soon as you start asking, you get a flood of answers." Paul Farmer

Acting like a sponge, illness soaks up personal and social significance from the world of the sick person.” Arthur Kleinman

"The poorest parts of the world are by and large places in which one can best view the worst of medicine and not because the doctors in these countries have different ideas about what constitutes modern medicine. It's the system and its limitations that are to blame." Paul Farmer
"Anywhere you have extreme poverty and no national health insurance, no promise of healthcare regardless of social standing, that's where you see the sharp limitations of market-based health care." Paul Farmer

Medical Anthropology: The study of human disease in a cross-cultural, historical and evolutionary perspective. It marks the intersection between biology, culture and applied research.


Important tenets that will be covered over the course of this semester:

  • Biology and culture matter equally in the human experience of disease
    • every aspect of the illness experience from the individual's recognition of the symoptoms to assessments of treatment outcomes is shaped by the cultural frameworks of the sufferer and of those to who he/she turns for help. (A "bio-cultural perspective" avoids the REDUCTIONISM of models which neglect cultural factors)
  • The political economy is the primary epidemiological factor
    • People's health risks and the treatment resources which are available are directly related to the economic and political structures in a society
  • Ethnography is an essential tool to understand human suffering due to disease
    • allows for a holistic understanding of health and illness
  • Medical anthropology can help alleviate human suffering
    • Can lead to health interventions by providing cultural information on the community as well as the medical practitioners and healthcare institutions that undertake the interventions. Culture is relevant.
CULTURE IN MEDICINE

"Outside the significance that man voluntarily attaches to certain conditions, there are no illnesses or diseases in nature" (Peter Sedgwick, 1981)

  • "natural events" do not prior to the human social meaning attached to them constitute illness, sickness or disease.
  • disease is an imposition of human meanings on naturally occurring processes...this seems less controversial when we look at other cultures
    • dano-Peruvian Shaman (illnesses result from injurious actions of sorcerers -HUMAN AGENCY), dano means "harm'. The Shaman's job is to reverse the effects of these poisons and in some cases punish them
    • onanism-18th century Europe-masturbation=the cause of many illnesses
    • draptomania-USA 1851 (Runaway Slave Syndrome)
    • Ovarian diseases- Victorian Era USA-HRT today???
    • Adam-today, USA
IMPACT OF CULTURE ON CONTEMPORARY BIO-MEDICINE
  • The rise of the MECHANICAL METAPHOR for the functioning of the human anatomy (THE BODY AS MACHINE), can be traced to the shift from a rural, farm economy to an industrial economic base. This has been argued to have contributed to the DEHUMANIZING OF CLINICAL PRACTICE.
  • DISEASE AS COMBAT (warfare metaphor) resonated with the priorities and concerns of the Cold War in which it arose. (Sontag, Martin, Jaret)
    • expensive high tech approaches to curing disease find the same compelling justifications as Pentagon budgets- no cost is too high when it comes to conquering the enemy, surrender is unacceptable
    • Doctors will not give up, patients are "forced" into extreme therapies
    • influence the way that funds are allocated and limits the ways that we might deal with disease otherwise when we go at things full throttle
      • mastectomy, chemotherapy and radiation
      • "the medical enterprise is from its conception value-loaded, it is not simply an applied biology, but a biology applied in accordance with the dictates of social interest" (Sedgwick)
    • These connections shape the knowledge and the practice of the surgeon and the shaman alike-CULTURAL ASSUMPTIONS and SOCIAL STRUCTURES have an impact on the way that both healers and patients think about and respond to disease.
DEVELOPMENT OF MEDICAL ANTHROPOLOGY

The history of the development of medical anthropology out of joint concerns of physical (biological) and cultural andthropology is recent in the discipline. 
  • Physician and experimental psychologist William HR Rivers was interested in non-Western medicines as a member of the scientific expedition organized by AC Haddon to the Torres Straits of Australia. 
    • Based on DIFFUSIONIST MODELS, he created a classification system for disease causation beliefs and an analysis of the geographic centers for each type.
    • Diseases are believed to be caused by either human agency (magical beliefs), spiritual or supernatural agency (eg taboo), and/or natural agency (virus, bacteria, genetics).
    • he concluded that Australian Aboriginal society must have been a wellspring for the idea that human agency is at the root cause of disease based on the intense clustering there of such belief. (through FIELDWORK)
    • "the practice of medicine is a social process, subject to the same laws , and to be studied by the same methods as other social processes" and the the "practices of primitive people were logical and systematic and in some respects more rational [than Western medicine at that time]." (Western science did not have monopoly on rationality).
  • Erwin Akerknecht: FUNCTIONALISM and Medical Anthropology
    • Ideas about the causes of disease can reflect lines of social tension in a society
    • The very threat of causing a disease can serve as a powerful social sanction supporting the status quo against those who are inclined to deviate from social norms 
      • witchcraft
      • homosexuality
      • prostitutes
    • argued for the interconnection of all aspects of society (functionalism) and the cultural construction of disease
    • "What a disease is in the last instance is, not a biological fact, but a decision of society"
  • 1950's Consulting :International Health Care Projects 
    • final catalyst to the creation of a separate field of medical anthropology
  • APPLIED ROOTS of Medical Anthropology
    • The Marshall Plan, the development of agencies like WHO (world health organization), AID (agency for international development), and INCAP (institute of nutrition of central america and panama), sought to eradicate epidemic diseases and improve basic sanitation in poor countries.
    • anthropologists were hired to identify and remove cultural impediments blocking the success of the project and overcoming these "cultural obstacles".
    • research inside, and soon after arose the concept of applied anthropology in medicine
  • Modern Medical Anthropology
    • Founded in 1971

QANON, Distrust of Biomedicine and Vaccine Conspiracies

  Distrust of vaccines may be almost as contagious as measles , More than 100 people have been infected with measles this year. Over 50 of t...